A week ago, Derek had his Hickman central line placed. The procedure went exactly as planned with no complications. Thanks for your prayers for this surgery. We did have a little scare later in the week when an EKG showed
Stanford Week 1 - April 18, 2016
One week ago tonight, Derek spent his first night in the Lucile Packard Children's Hospital at Stanford. He began the clinical trial on Tuesday with the first dose of the study drug Selinexor. In the last week, there haven't been
He's In!!! April 11, 2016
What a day this has been. We spent the morning at the hotel waiting. Waiting for a phone call that would let us know whether we got into the Ronald McDonald House (RMH) close to the hospital. Waiting for a phone call regarding appointment times. But most of all we were waiting for a call from
Into the Unknown - Sunday, April 10, 2016
When I last wrote, we were exploring treatment options for Derek around the country, as no one at City of Hope or at Loma Linda really had any options we hadn't already tried. We asked St. Jude's, but were told Derek didn't qualify for any clinical trials there. We talked to a friend at the NIH, but also
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