Thanks to your prayers and the grace and mercy of God we are being pulled from the pit. I can see, once again, and have hope for the future. Our faith is being severely tested, but God has not allowed anything we cannot handle with the strength He gives us. His strength is made perfect in our weakness. He has great strength and we have much weakness. Thank you again for your prayers on our behalf.
Today was a day of waiting Derek’s blood counts continue to fall, and before they fall too much, the doctor wanted him to get a permanent port put in so he doesn’t have his PICC line tubes hanging from his arm. There is always a risk of an active little boy pulling them out by accident. The dressings have to be changed weekly, which is painful, and the risk of infection is greater with its being external. The porta-cath, as it is called, will be placed in his upper chest just below his clavicle and will be placed just under the skin. Once the incisions heal, he can get it wet without fear of infection and be a bit more active. He can receive medications and IV fluids through it and also have blood drawn when needed. So he was put on stand-by for surgery today, meaning that he didn’t have a scheduled time, but would be taken in when they had an opening. However, he couldn’t eat or drink anything after midnight, so he was really hungry.
We waited, and tried to distract Derek by going to the play room, watching a video, and playing games with him. When the playroom closed for lunch, he looked at me with big tearful eyes and said, “Is this the second meal I have to miss?” It is so hard to know your child needs and wants something, but also know it is not in his best interest to give it to him. Does God ever feel this way?
First they told us it would be around 1 p.m. Then it was 3:30 p.m. Then 5:00. He missed his third meal. Finally just after 7 p.m. they took him in for surgery. This time we could not accompany him into the OR, and he was scared and tearful. He did really well with the anesthesia and the procedure. Now for recovery. He has another procedure in the morning.
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